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0 (hodnocen0 x )

(5) Půjčeno:5x 

BK

EB

New York : Oxford University Press, [2018]

xx, 548 stran : ilustrace, faksimile, formuláře ; 26 cm

ISBN 978-0-19-931394-5 (brožováno)

ISBN 978-0-19-065235-7 (e-kniha)

ISBN 978-0-19-065236-4 (e-kniha)

Terminologický slovník

Obsahuje bibliografické odkazy a rejstříky

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001484859

Preface // Acknowledgments xix // section i Overview and Introduction // 1. Ethics and Palliative Care 3 // Evolution of the Fields 4 // Ethics 4 // Palliative Care 12 // Relationship of Ethics and Palliative Care 16 // Summary Points 19 // 2. Overview of Ethical Approaches 25 // Clarify and Classify the Dilemma 28 // Review Existing Information 29 // Acquire Additional Relevant Information 31 // Analyze the Ethical Issue 32 // Relevant Legal and Professional Considerations 34 // Formulate Response, Consider Criticisms, and Identify // Lessons Learned 42 // Next Steps in the Absence of Resolution 43 // Conclusion 45 // Summary Points 45 // section ? Ethical Issues in Determining the Plan of Care // 3. Advance Care Planning and Surrogate Decision-Making 53 // Hierarchy of Ethical Decision-Making 54 // viii I Contents // Autonomy 54 // Substituted Judgment 61 // Best Interests 67 // Advance Care Planning 70 // Treatment Directives 72 // Proxy Directives 77 // POLST Paradigm 78 // Prognostication 84 // Accuracy 85 // Communication 87 // Application 89 // Summary Points 90 // 4. Specific Ethical Issues at the End of Life 101 // Determining Code Status 101 // Case Study 101 // Terminology 103 // How to Determine Code Status 107 // Code Status in the Operating Room 111 // Return to the Case 113 // Patients Who Want “Everything” 114 // Case Study 114 // Time-Limited Trials 118 // No Escalation of Treatment 120 // Return to the Case 122 // Overriding Patient Refusal 123 // Case Study 123 // Return to the Case 126 // Summary Points 127 // section ill Death and Dying // 5. The “Right to Die” 135 // Gradual Acceptance of a Right to Die 136 // Forgoing LSMT 137 // Intensive Symptom Management 140 // Physician-Assisted Dying 142 // Euthanasia 143 // Historicolegal Evolution 144 // Ethical 147 // Voluntarily Stopping Eating and Drinking 152 // Clinical 153 // Ethical 154 //

Relationship of Withdrawing and Withholding 156 // Summary Points 160 // 6. Forgoing Life-Sustaining Medical Treatment 165 // Respiratory 166 // Compassionate Extubation of the Alert Patient 168 // Compassionate Extubation of the Paralyzed Patient 170 // Cardiac 174 // Case Study 174 // Return to the Case 179 // Renal 180 // Case Study 180 // Return to the Case 183 // Nutrition and Hydration 184 // Enteral 187 // Parenteral 192 // Summary Points 195 // 7. Pain and Symptom Management at the End of Life 203 // Case Study 203 // Historicolegal Background 203 // Clinical 206 // Ethical 208 // Rule of Double Effect 209 // Patient or Surrogate Refusal of Symptom Management 214 // Justice Concerns 218 // Return to the Case 220 // Summary Points 220 // 8. Physician-Assisted Dying 225 // Case Study 225 // Terminology 225 // Historicolegal Background 226 // Global Perspective 231 // Clinical 232 // Ethical 234 // Arguments in Favor of PAD 234 // Arguments Against PAD 238 // Conclusions 242 // Return to the Case 246 // Summary Points 246 // 9. Palliative Sedation 251 // Case Study 251 // Historical Background 251 // x I Contents // Legal and Professional 253 // Clinical 254 // Ethical 256 // Minimum Requirements 256 // Inability to Participate in Decision-Making 258 // The Quality of an Unconscious Life 259 // Impact on Life Expectancy 260 // Return to the Case 265 // Special Considerations 265 // Palliative Sedation for Existential Distress 265 // Pediatric Implications 268 // Risk of Heightened Suffering 269 // Summary Points 270 // section IV Pediatric Ethics and Palliative Care // 10. Overview of Pediatric Ethics and Palliative Care 277 // Differences between Pediatric and Adult Palliative Care 278 // Distinct Diagnoses 278 // Trajectory and Nature of Illness 279 // Unique Aspects of Treatment of Children 279 // Unique Social Contexts and Constructs 280 //

Children Aren’t Supposed to Die 281 // End-of-Life Decision-Making in Pediatrics 281 // Differences between Pediatric Ethics and Adult Ethics 283 // In General, the Patient Is Not the Decision-Maker 283 // The Decision-Maker Is Not Chosen by the Patient 284 // Best Interest Standard 285 // The Decision-Maker May Have Specific Divided Loyalties 287 // The Clinical Relationship Is a Triad 287 // Summary Points 288 // 11. Ethics of Prenatal Palliative Care 291 // Case Study 291 // Historicolegal Background 292 // Clinical 293 // Ethical 294 // Invasive Testing 294 // Continue or Terminate the Pregnancy? 295 // Caesarian Section 296 // Terminalogy 298 // Perinatal Hospice 299 // Return to the Case 300 // Summary Points 301 // Contents | xi // 12. Ethics of Neonatal Palliative Care 305 // Case Study 305 // Historicolegal Background 305 // Clinical 310 // Ethical 312 // Prognostic Accuracy and Communication of Information 312 // Window of Opportunity 317 // Medically Administered Nutrition and Hydration 318 // Are Newborns Treated Differently than Other Patients? 320 // When Parents and Physicians Disagree 322 // Groningen Protocol (Netherlands) 326 // Return to the Case 328 // Summary Points 329 // 13. Ethics of Child and Adolescent Palliative Care 335 // Case Study 335 // Historicolegal Background 336 // Clinical 339 // Ethical 342 // Disclosure 342 // Case, Continued 345 // Refusal of Medical Treatment 346 // Advance Care Planning 353 // Return to the Case 355 // Summary Points 355 // section v Other Topics // 14. Requests for Nonbeneficial Treatment 363 // Case Study 363 // Historicolegal Background 364 // Clinical 368 // Ethical 372 // The Special Case of CPR 378 // Return to the Case 384 // Summary Points 384 // 15. Neuropalliative Care 391 // Clinical 391 // Dementia 394 // Case Study 394 // Prior Advance Directives 395 // Spoon-Feeding 399 //

Medically Administered Nutrition and Hydration in Dementia 401 // Return to the Case 403 // Disorders of Consciousness 404 // Case Study 404 // Return to the Case 408 // Amyotrophic Lateral Sclerosis 408 // Case Study 408 // Return to the Case 410 // Acute Spinal Cord Injury 411 // Case Study 411 // Return to the Case 414 // Stroke 414 // Case Study 414 // Return to the Case 417 // Summary Points 418 // 16. Death and Organ Donation 425 // Case Study 425 // Historicolegal Background 425 // Clinical 429 // Death by Neurologic Criteria 429 // Death by Circulatory Criteria 430 // Ethical 431 // Death by Neurologic Criteria 431 // Death by Circulatory Criteria 439 // Return to the Case 444 // Summary Points 445 // 17. Research in Palliative Care 449 // Case Study 449 // Historicolegal Background 449 // Clinical 451 // Ethical 454 // Informed Consent 454 // Scientific and Social Value 456 // Fair Selection 457 // Risk/Benefit Ratio 458 // The Limits of Evidence-Based Medicine 460 // Clinical Trials and Hospice Enrollment 463 // The Ethics of Compassionate Use 464 // Return to the Case 467 // Summary Points 468 // Contents | xiii // 18. Clinical Practice of Palliative Care 475 // Role of Communication in Palliative Care 476 // Case Study 476 // Historicolegal Evolution 476 // Disclosure 478 // Return to the Case 481 // Role of Culture in Palliative Care 481 // Case Study 481 // Communication of Prognosis 483 // Locus of Decision-Making 484 // Attitudes toward End-of-Life Care and Advance Care Planning 486 // Return to the Case 488 // Role of Spirituality in Palliative Care 488 // Case Study 488 // Miracles 490 // Religious “Mandates” for Continuing Life Sustaining // Medical Treatment 494 // Concepts of Suffering 496 // Return to the Case 498 // Summary Points 499 // 19. Final Thoughts 505 // Access to Palliative Care 506 // In the Developed World 507 //

In the Developing World 511 // Maintaining Highly Functioning Teams 512 // Moral Distress 514 // Frequently Used Abbreviations 523 // Glossary 525 // Legal Cases 529 // Index 531

(OCoLC)1006536458