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Second edition

Baltimore : The Johns Hopkins University Press, 2011

xvi, 539 stran : ilustrace ; 23 cm

ISBN 978-1-4214-0149-2 (brožováno) ISBN !1-4214-0149-5 (chyb.)

Obsahuje bibliografické odkazy a rejstřík

002002501

CONTENTS // PART I SOCIETAL AND INSTITUTIONAL ISSUES // l Epidemiology and Health Services Research 3 // Chris Feudtner and Kari R. Hexem // 2 Goals,Values, and Conflict Resolution 26 // Carson Strong, Chris Feudtner, M. Karen Ballard, Brian S. Carter, // and Deborah L. Dokken // 3 Barriers to Integrating Palliative Care and Potential Solutions 56 // Patrick M. Jones, Sally Sehring, Dianne Gray, and David M. Steinhorn // 4 Educational Initiatives 85 // Betty Ferrell, Hollye Harrington Jacobs, Jeffrey C. Klick, // John M. Saroyan, Elana E. Evan, Margaret Comeau, Sarah E. Friebert, // and David Browning // 5 The Art of Advocacy 114 // Devon Dabbs, Lori Butterworth, Mary Jo Gilmer, Brian Greffe, // and Melody Hellsten // PART II THE CYCLE OF CARE // Decision Making 139 // Robert J. Graham, Marcia Levetown, and Margaret Comeau // 7 Communication Skills and Relational Abilities 169 // Marcia Levetown, Elaine C. Meyer, and Dianne Gray // 8 Psychosocial Needs of the Child and Family 202 // Stacy F. Orloff, Barbara Jones, and Kris Ford // 9 Spiritual Dimensions 227 // Dexter Lanctot, Wynne Morrison, Kendra D. Koch, and Chris Feudtner // 10 Holistic Management of Symptoms 244 // Richard Hain, Lonnie Zeltzer, Melody Hellsten, Susan O. Cohen, // Stacy F. Orloff, and Dianne Gray // Il Bereavement 275 // Stacy F. Orloff, Suzanne S. Toce, Lizabeth Sumner, and Lee Ann Grimes // 12 The Other Side of Caring: Caregiver Suffering 309 // Cynda H. Rushton and M. Karen Ballard // PART III SPECIAL CARE

ENVIRONMENTS // AND PATIENT POPULATIONS // 13 Palliative Care in the Neonatal-Perinatal Period 345 // Suzanne S. Toce, Steven R. Leuthner, Deborah L. Dokken, // Anita J. Catlin, Jennifer Brown, and Brian S. Carter // 14 Palliative Care in the Pediatric Intensive Care Setting 387 // Kathryn Weise, Marcia Levetown, Carol Tuttle, and Stephen Liben // 15 Palliative Care in the Home, School, and Community 414 // Susan M. Huff, Stacy F. Orloff, Janice Wheeler, and Lee Ann Grimes // 16 Palliative Care for the Child Who Has a Genetic Condition 441 // Sara L. Perszyk and Brian S. Carter // 17 Integrating Palliative Care with HIV Care and Treatment 465 // Nancy Hutton, Cora K. Welsh, and Maureen E. Lyon // 18 Integrating Palliative Care with Pediatric Hematology/Oncology 488 // Sarah E. Friebert, Brian Greffe, and Janice Wheeler // Index 521 // viii CONTENTS