.

0 (hodnocen0 x )

EB

ONLINE

London ; New York : Routledge, 2004

1 online resource (viii, 211 p.)

ISBN 0415316790

ISBN 0415316804 (pbk.)

Includes bibliographical references and index

Introduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan -- Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton -- Blood donation for genetic research : what can we learn from donors’ narratives? / Helen Busby -- Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr -- Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan -- Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer -- Abandoning informed consent : the case of genetic research in population collections / Jane Kaye -- Children’s participation in genetic epidemiology : consent and control / Emma Williamson ... [et al.] -- ’Public consent’ or ’scientific citizenship’? What counts as public participation in population-based DNA collections? / Sue Weldon -- Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis.

Electronic reproduction. Ann Arbor, MI : ProQuest, 2015. Available via World Wide Web. Access may be limited to ProQuest affiliated libraries

001682164

full

(Au-PeEL)EBL200394

(CaONFJC)MIL5823

(CaPaEBR)ebr10098900

(MiAaPQ)EBC200394

(OCoLC)304072273